I am a former college professor
and television executive, turned eldercare expert, knowledgeable in
all aspects--including Long Term Care Insurance, which would have
saved our family's entire life savings as well as a fortune in
Kleenex. I had to sell my home to provide 24-hour (in their home)
care, for 5 years, to 2 parents, both with (misdiagnosed) early stage
Alzheimer's disease. My once-adoring father turned verbally and even
physically abusive towards me, and I was heart-broken to have lost his
love. But then, I just couldn’t believe it when I’d take him to the
doctor--where he could act completely normal when he needed to! It was
an unbelievable
nightmare, but with sheer determination I finally solved the endless
crisis--medically and behaviorally.
I was so infuriated
that I didn’t get the help I needed with my father sooner and
compelled by the experience that I wrote my first book,
Elder Rage, to help
prevent the 77 million baby boomers from making the mistakes I made
while caring for their aging parents. Actually written with
laugh-out-loud humor to make a tough subject palatable,
Elder Rage has become the
“Bible” for a generation beginning this difficult phase of their
lives. Now an advocate for eldercare awareness and reform, my biggest
missions are: funding for, and the importance of, early diagnosis of
Alzheimer’s; prevention of elder abuse/neglect/exploitation; and
funding for Adult Day Cares, which saved my parents’ lives as well as
my own. More than 5,000 new centers are needed just to cover the
current need. I have testified before the Assistant Secretary on Aging
about the need for more funding.
·
I am the author & publisher of
Elder Rage, a
Book-of-the-Month Club selection, which has received 50+
prestigious endorsements
www.elderrage.com/Review.asp and 155 five-star reviews on
Amazon.com. It is required reading at several universities for
graduate courses in geriatric assessment & management, and is being
considered for a feature film.
·
As a national speaker on
dementia/eldercare awareness & reform (CEU’s & CME’s for
professionals), I have “edu-tained” at 60+ conferences in the last two
years. I also speak at writing and publishing events about what it
takes to create a bestseller. I am the spokesperson for an upcoming
series of tapes on Alzheimer’s, and I am featured in an upcoming
documentary about AD. View a half-hour presentation, Laughter & Tears
in the Caregiving Years:
www.intelemedia.tv/IE030423Hi.asx. References available.
·
I produce & host an Internet radio
program, interviewing six health/aging/caregiving professionals every
Saturday from 3-5 PM Pacific Time on
www.wsradio.com/copingwithcaregiving. 300+ archived interviews are
available for listening-on-demand. WsRadio is now powering eBay
Radio--69 million subscribers! Perhaps you’d be an appropriate guest,
or you can refer experts who would be, or perhaps you have a related
product or service you’d like to advertise to a targeted market.
·
As a frequent guest on talk radio &
television, I discuss dementia/Alzheimer’s, long-term care insurance &
planning, and how to get “challenging” elders to: give up driving,
accept a caregiver/cleaning person, take medication, see the doctor,
attend adult day care, move to assisted living, sign Durable Power of
Attorney, etc. Listen:
www.findaguest.com/Guests/JacquelineMarcell.htm.
·
I am honored that the National
Association of Women Business Owners (NAWBO) will present me with
“Advocate of the Year” at their Remarkable Women Awards event October
24th.
·
For a current schedule and past
events, please see
www.elderrage.com/Events.asp.
For more
information:
One in Three will
be Affected by Dementia
Either in
Themselves or a Loved One
IRVINE CA--If
you’re caring for elderly loved ones and find the task daunting,
you're in the same position that Jacqueline Marcell found herself in.
She gave up her career as a television executive, went through 40
caregivers, and cried rivers for a year before she succeeded in
solving the endless crisis--and she tells how she did it in her
riveting bestseller: Elder Rage, or Take My Father... Please!
How To Survive Caring For Aging Parents (Impressive Press,
$19.95,
www.ElderRage.com).
Delivered with a humorous tone to make a tough subject palatable,
Marcell relates how she fought through an unsympathetic medical system
and endured her "Jekyll & Hyde" father's physical and emotional wrath,
until she finally found help for him and her ailing mother. What she
didn't understand was that his deeply engrained life-long negative
behavior pattern of screaming and yelling to get his way (though
never at her before), was
becoming intermittently distorted with the onset of dementia,
namely--Alzheimer's.
Education is the Key
Marcell points out
that not everyone becomes aggressive with dementia. She says her
mother was “sweet and lovely” both before and after her Alzheimer's
diagnosis--indicating that the disease can manifest itself in many
ways. There are many types of dementia, Alzheimer's is just one type,
and there’s no stopping the progression nor is there yet a cure.
Alzheimer’s is typically preceded by “Mild Cognitive Impairment”
(MCI), which can last five to ten years. 90% will then progress to
Stage One Alzheimer’s, which lasts 2-4 years. Stage Two lasts 2-10
years (and requires full-time care), and Stage Three, the end,
typically lasts 1-3 years.
By the age of 65 one out of every ten persons has some form of
dementia, and by the age of 85 (the fastest growing segment of the
population), one out of every two. Shockingly, over 54 million
Americans struggle to provide care for aging family members and
friends (providing 95% of the care they need), but statistically
families (and many doctors who are not dementia specialists) ignore
the early warning signs of dementia, because they incorrectly believe
that these intermittently odd behaviors are just a normal part of
aging and untreatable senility.
Marcell says her mission is to “spread the word about the importance
of early diagnosis to the 77 million baby boomers who
are so often in denial about eldercare and dementia until they are in
a crisis.” She wants everyone to know that with the proper treatments
and medication, dementia symptoms might be masked and slowed down by
2-5 years, keeping a person independent and in Stage One longer, which
is intermittent and mild. “Seeking help early can save families a lot
of heartache and money, and save our society the burden of caring for
so many elders who decline sooner than need be.”
The Alzheimer’s Association reports that by delaying the onset of AD
for five years, we could save $50
billion in annual health care costs. Even a one-month delay
in nursing home placement could save $1 billion a year. Marcell says,
“It's really very simple: When your loved one does something that
strikes you as illogical or irrational--it is! You don't need to be a
Ph.D. to know something is wrong--you need an M.D. who can diagnose it
and treat it properly.”
Finally the Answers
Marcell credits the
Alzheimer's Association (800-272-3900) for referring her to a
geriatric dementia specialist who
uncovered her father's early stage Alzheimer's disease. (His regular
doctors missed it completely.) Medication was prescribed to slow the
dementia down and improve his cognitive functioning (Aricept,
Exelon or Reminyl), and then the
aggression and (often-present) depression were treated.
After balancing her father with optimal nutrition, as well as Vitamin
E, anti-oxidants and anti-inflammatory therapies, Marcell implemented
her own behavioral technique of rewards & consequences (because his
short-term memory was still quite good), and succeeded in turning
around his bad behaviors--the majority of the time.
When that didn’t work she used distraction, redirection, reminiscence
and calmly validated his frustrated feelings--but discovered that the
offer of his favorite ice cream usually worked the best to get him
into the shower--even as he swore a blue streak that he had just taken
one (a week ago!).
The final keys were getting herself into a support group, and getting
both parents out of bed ("waiting to die") and enrolled in physical
and emotional therapies at an Adult Day Health Care facility--which
completely turned their lives around at 80 and 85. Marcell
adds, “75% of dementia patients are being cared for at home, and
sadly, elder abuse/neglect/exploitation is rising dramatically because
families are so unprepared for the frustrations of caring for their
elders, who are living longer than ever. She believes that with
education and the use of Adult Day Care, the horror of elder abuse can
be reduced. She is pleased that the National Center on Elder Abuse
published a very favorable review of Elder Rage in
their national newsletter, and that the National Adult Day Services
Association (NADSA) honored her with their media award for her
tireless efforts to bring national attention to the value of Adult Day
Care.
Also a
Self-Help Book
Elder Rage
is a combination non-fiction novel &
self-help book, with answers to difficult "how to" questions like:
getting obstinate elders to give up driving, accept a caregiver, see a
different doctor, go to adult day care, move to a new residence--and
includes a wealth of valuable resources, websites and recommended
reading. The addendum by renowned dementia specialist, Rodman Shankle,
MS MD, “A Physicians Guide to Treating Aggression in Dementia,” helps
doctors diagnose and treat this troubling aspect of dementia, which
can occur in some patients. The bottom line message of both author and
doctor is that, “there can still be a good life after a diagnosis of
dementia, if it is properly managed medically and
behaviorally.”
The list of 50+ high-profile endorsements (www.elderrage.com/Review.asp)
include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Jacqueline Bisset,
Ed Asner, Dr. Bernie Siegel, John Bradshaw, Dr. John Gray, Betty
Friedan, Julie Harris, Art Linkletter, Leeza Gibbons, Dr. Nancy
Snyderman/ABC News, Erin Brockovich, the late Steve Allen and Robert
Stack, Johns Hopkins Memory Clinic, Duke University Center For Aging,
Dr. Eric Tangalos/Mayo Clinic, Dr. Rudy Tanzi/Harvard Medical School,
Senator John D. Rockefeller IV, and the National Adult Day Services
Association--who honored Marcell with their Media Award for her
tireless efforts to bring attention to the value of Adult Day Care.
Hitting a Chord
Marcell’s speaking career began when she
was invited to replace an ailing Maureen Reagan at the California
Governor's Conference for Women, presenting a caregiving seminar with
First Lady, Sharon Davis. She speaks nationally to families, and to
professionals who earn CEU’s & CME’s, about eldercare awareness and
reform (www.elderrage.com/Events.asp). She is the spokesperson for an upcoming series of
tapes on Alzheimer’s Disease, and is featured in an upcoming
documentary about AD. Having been a sought-after guest on hundreds of
radio & television programs, including CNN (twice) and NBC--Marcell
launched her own Internet radio program, “Coping with Caregiving”,
heard worldwide, where she interviews experts in the fields of health,
aging and caregiving on
www.wsRadio.com/copingwithcaregiving.
A feature film company is considering
Elder Rage for a movie;
the Book-of-the-Month Club selected it; and 155 five-star reviews on
Amazon.com indicate she’s hit a chord with a timely issue--but Marcell
says she is most honored that several universities use
Elder Rage
as required text for
their courses in Geriatric Assessment & Management. The National
Association of Women Business Owners (NAWBO) will honor her with
“Advocate of the Year” at their Remarkable Women Awards event October
24th.
Numerous publications have featured Marcell, including:
Prevention, Woman’s
Day, Los Angeles Times, San Diego Union Tribune, Kaiser Permanente
Journal, Aging Today, Family Therapy Magazine, Institute of
Gerontology, Modern Healthcare and The Gerontologist--but it was when
she landed the cover story of AARP's
Bulletin
(circulation 22
million) that Elder Rage
catapulted to the fast track of becoming a bestseller.
Marcell emphasizes, “Dementia costs American business over $61
billion a year--largely due (79%) to lost productivity and
absenteeism of employees who must take time off work to care for
ailing loved ones. Everyone should know the ten early warning signs of
dementia and the importance of seeking help
sooner than later.”
She says she learned caregiving the hard way, which is why she
wrote her first book, “so that no one would ever have to go through
what I did.”
Determined to make a difference, Marcell says her mission is to, “get
to Washington as quickly as possible and help change our eldercare
laws. 34 million Americans are age 65 and older right now, and by 2030
there will be 69 million--and I will be one of them." She laughs, "I
have an ulterior motive, I don't have children--so I've got to help
straighten things out before I get old!"
Ten Warning Signs of
Alzheimer’s
1. Recent
memory loss that affects job skills
2. Difficulty performing familiar tasks
3. Problems with language
4. Disorientation of time and place
5. Poor or decreased judgment
6. Problems with abstract thinking
7. Misplacing things
8. Changes in mood or behavior
9. Changes in personality
10. Loss of initiative
###
Copyright 2003
Permission is granted to distribute all/part of this article with the
following contact information:
Jacqueline
Marcell Impressive Press 25 Via
Lucca, J-333, Irvine, CA 92612
Ph (949)
975-1012
www.ElderRage.com
j.marcell@cox.net
“Coping with Caregiving” Radio Program:
www.wsRadio.com/copingwithcaregiving
Jacqueline Marcell, B.S.
Author / Publisher / Radio Host / Speaker / Eldercare Advocate
Elder Rage, or Take My Father… Please! How to Survive Caring for
Aging Parents
A
Book-of-the-Month Club Selection
www.ElderRage.com
"Coping with Caregiving" Radio Program
www.wsRadio.com/CopingWithCaregiving
Impressive Press
25 Via Lucca, Suite
J-333
Irvine, CA 92612-0673
P 949-975-1012
F 949-975-1013
C 714-878-3713
j.marcell@cox.net